Life after Reye’s syndrome
We offer advice to parents of children who have survived Reye's syndrome or a Reye-like disorder - to help understand the potential needs of the child and their family, and to provide guidance in securing any necessary services.
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An introduction to life after Reye’s syndrome
It is possible for the Reye’s syndrome survivor to recover completely with no after-effects or no apparent changes in the child. There may, however, be recovery with brain damage and disability ranging from very slight motor or learning disabilities to profound brain injury.
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Neurological problems
Reye's syndrome or a Reye-like disorder can result in brain damage and disability in some survivors. If damage occurs, it can range from slight to profound, depending on the individual case.
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Home after hospital
There are many adjustments required by the family following a child being diagnosed with Reye's syndrome or a Reye-like disorder. Here we discuss what changes you might expect from your child after returning from hospital and what adjustments can be made.
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Dealing with disability
Discovering that your child has a special need or disability will be devastating for parents. This page discusses dealing with this and offers resources for parents.
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Financial help – benefits and grants
If you are caring for a child with a disability you should be aware that a great deal of change is taking place at the present time when it comes to considering the financial help, benefits and tax credits available.
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Disabled children’s services
Local authorities have a responsibility to help families with disabled children. Many children have additional needs and disabilities, and some are more severely affected than others. Some disabled children and their parents will need practical support at home.
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